OK, so school was off - hard to find time to write here!
We had the first of the team wrap-around meetings/p-t conference at school on Wed., Day 129. Generally doing just fine - has his moments at school (as on the daily sheets) but really likes math and does well in it! Came up with a list of probably 20-25 strengths for Josh at the wrap-around meeting! Whoo hoo!
Day130, no school. We met Peter's mother and sister at the Botanical Gardens. After some initial problems (a PNES in the parking lot and then sitting down in the middle of the visitor's center!), the day was really good. I did use one of the Gardens' wheelchairs and Josh would not get up to walk, but he had a great time seeing them and doing the Gardens' bingo game - spotted everything on the card except the Fall weather - it was hot, sunny, and more like a June day! Afterward, we went to Max and Benny's to pick up lunch and did train hunting while we had deli - yum!!!
Day 131, I had to work so Gramma and Boompah came to kidsit. They said he was terrific all day. Had a session with Dr. Straube in the evening - talked about how Josh either winds up not having or comes out of quickly his PNES or meltdowns when you acknowledge some feeling he's experiencing. As we were leaving, he started to go into a PNES and doc asked him if he was nervouse or scared that he was going to have a "brain hiccup" (epileptic seizure) and fall, Josh came right out of the PNES and said yes. He got up and went right out to the car! Amazing. Gramma and Boompah hung around the house and we all had deli dinner when we got home.
Day 132, I hadn't planned on working on Saturday but Gramma and Boompah were all prepped to kidsit. So I went in to work for 1/2 a day and then we all took a drive up to Wisconsin to see the colors. Sorry, Badger fans, but the colors in Illinois were MUCH better! Josh was totally wiped and did hit Gramma once in the car but he calmed down immediately. We stopped for a snack and I made him get out of the car to cool off - and he did, even gave Gramma a hug as he was getting back in the car and told her he was sorry.
Day 133, lazy, lazy day! Yeah!! I was watching a movie at one point ("O Brother Where Art Thou") and Josh wanted to watch TV. I said nope, I was watching the movie. He went right in to the piano and started PRACTICING!! He practiced for 20 minutes all on his own! After the movie (it ended shortly after that), I went in and practiced with him for another 20 minutes! He really likes playing - Artur Rubenstein he ain't, but he likes it! Yeah!! Piano was one of the things the wrap-around team thought of as using as a reward during school - the school social worker may even have a keyboard to bring in so Josh can use it (and maybe the other kids as well!).
Day 134, Monday, no school - Columbus Day. We had another wrap around meeting here at the house- just Gramma, Boompah, me and Josh with the facilitator. Came up with my strengths, some ideas for a male mentor/respite worker, and wrap-around folks will pay for Josh's yoga class when that starts. She also said that, after Dad brought up the problems with communication, that there may be a way for wrap-around to pay, at least part, of the speech therapy at the center in Grayslake - yeah!!!!! That's the place that understands the connection between the speech and sensory issues, and wants to do the Listening Therapy again with Josh. That would be soooo amazingly terrific if that works out! Good meeting, Josh was very talkative the whole time.
So, here we are into Day 135, Tuesday. Piano tonight, don't think there's anything the rest of the week except school and work -phew!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment