Thursday, September 16, 2010

Day 107, 108, into 109

Day 107 - had a good day at school even though a few "meltdowns." It seems there are certain times of the day (and yesterday's note shows it again) when the meltdowns happen - getting off and sometimes on the bus at school, lunchtime. There has to be some connection, and a way for school folks to circumvent the habit it seems he's into there. The rest of the days go really well and the note is always that Josh had a good day or a great day - and the communication system shows he's working hard, is participating in things, etc. The major transitions during the school day are what is causing problems.

At home, he's getting on the bus really well, off the bus easily, and he's playing around the house after school. He's tired, that's for sure. He's not taking any snoozes during the school day (with rare exception), so when he gets home he plays for a couple hours, we have dinner, and then he just collapses on the couch - snore city! Going up to bed has been no problem - I just wake him, and walks right upstairs.

Heard from a friend whose daughter has autism. Keeping them in my thoughts and prayers, that's for sure. One of those stories where the dd was totally mishandled by school folks and she wound up in behavioral hospital for 9 weeks. Horror story all the way around. She's home now, but it sounds like they are going through the wringer. (so glad I didn't listen to one doc who suggested Josh go into hospital - things have improved so much since meeting with Dr. Madamala and Dr. Straube - finding the right people is so gosh darn hard and I feel like we've been very lucky in that regard).

Yesterday, Day 108, was the one year anniversary of the broken leg. I happened to look at my clock on my computer at 12:48 - just about the minute last year that I was getting in the ambulance with him. Yeesh, what a memory to hold on to. Thank goodness he made the recovery he did - that leg is stronger than ever, and even straighter than it had been with practically no pronation in that left foot anymore! It's taken a long time, but I think even Josh is feeling like he's stronger.

So, into day 109. I can't wait to set the clocks back - this getting up in the dark stinks!

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