Another mixed bag today. Josh got up just fine, got washed/dressed, ate a good breakfast, then wouldn't go outside for the bus. He finally did after a few minutes, then had a full blown PNES when the bus got here (bus was pretty late). The daily sheet said he got off the bus OK, but then went into the bathroom at 9:10 and didn't get off the pot until 10:45! They had to sort of "force" a "meltdown" (we really need to come to terms with the terms - I'm pretty sure they were talking about a PNES) and he got up all happy and went right into the hygiene stuff without a problem. They went for a long walk and, in a crosswalk, he laid down. They had the wheelchair with them so got him into it and off the street. He walked, then, for about 45 minutes! Josh's teacher wrote that she really wants to use the wheelchair for those times that it could be, really, dangerous so they are putting limits on it - he can use the wheelchair to cross the street but only if he uses his arms to move it, same with some times in school, but otherwise he has to walk. And, his teacher started a new kind of visual calendar that tells Josh when it's OK to use the wheelchair and when it's not. My concern is he is going to become reliant on a wheelchair but maybe not, and I know it makes it all easier for school folks. I just wish, hope, pray that these PNES and the laying down thing eases up. It actually has since last spring, but it's behavior that is definitely getting really, really old. Other than those times at school and this a.m., he seemed to have a pretty good day. I simply don't get it....
Tomorrow, Day 121. Keep fingers crossed that it will be an easier day - they go to SEDOM, swimming, etc. Could be interesting.
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