Well, Day 15 certainly was quiet - in fact Josh didn't come downstairs until almost 2:30 in the afternoon! He just wouldn't get up. He's done this once or twice before here at home - don't know if it's the lack of routine when we're home on "lazy days," or stubbornness, or what. He will say he's mad about something, but not always what it is he's mad at.
Anyhow, once he finally did come downstairs, he finally ate and drank something. Then we made an errand run over to the little general store by the lake, then sat and watched the boats (not too many people actually in the water - it was pretty cool yesterday) for awhile. After dinner, he fell asleep on the couch while I was doing dishes - woke him and he got upstairs without any problem, peed in the bathroom, went right back to sleep. In fact, he went to bed at 9:00 or so, I went to bed shortly after.
Ordered more NV - both chocolate and the vanilla.
Two things I've noticed in the last couple of days - he is walking more alternating feet going up the stairs - instead of the one step at a time thing. When Josh was recovering from the broke femur, the PTs said to do good leg up first, bad leg down first, one step at a time. He has been going up/down the stairs like that since January. But now he's doing alternating which is great!
Also, he had gotten a gift card from Lakeshore Learning from Uncle Barry and Aunt Linda. He spent hours - HOURS - looking through the catalog choosing what he wanted. He narrowed it down to three things - a post office play set, a cash register, or kitchen appliances (blender, mixer, and drip coffee pot) - he finally decided on the kitchen stuff (which should be delivered tomorrow). OK, why is this so exciting?? 1) Josh is usually totally freaked by the blender and mixer I use in the kitchen - to the extent that I don't use them when he's around (of course, I started using the blender for the NV and he's gotten to the point where he can be in the kitchen with it going now); 2) Josh has never spent time looking through any catalog, let alone to choose something from it; and 3) Josh has never been interested in imaginative play and all three of the things he narrowed his choice down to are used in imaginative, dramatic play! YEAH!!!!
Day 16 - once again, I think the peeing thing is behavioral/psychological - it's a matter of being afraid to go to the bathroom. Everytime it's time to get up to go pee, he'd go into a very, very short PNES (so there were three of them today - each less than 2 minutes, and the one this a.m. getting out of bed was probably less than 30 seconds). It's like he has to get the anxiety out because, as he is whenever there's a PNES, once it's over, he just gets up and goes about his business. Except, during these PNES, he will pee so by the time he goes in the bathroom, he's almost already done. I am doing the Depends on the outside of the underpants - it is saving on laundry (it's all laundry, but he has more underpants than shorts), and he's not getting embarassed by making his shorts wet. I also think he's not peeing as much during the PNES because he did pee in the bathroom some once it was over. I got the idea from another mom who went through a similar experience with her daughter - a teacher had recommended it to that mom. She said within just a few days, her daughter stopped the peeing in her pants. I'll try this for a bit, hopefully it will work. If not, I've got some other things to try. Josh has talked about what happened to him in a bathroom, even named the person who did it (hitting Josh, in a bathroom and in a "yittle room" in a different location) so if I can get him to talk more about it, maybe we'll be on the right track.
Gramma and Boompah were here today - our telephone died so I needed to go buy a new one. Gramma watched Josh while I went to the store and Boompah did their grocery shopping. Josh did great - he was dancing to the TV, goofing around saying the trains in the train movie were "running over" things in the room, etc. But, dinner time came and he wouldn't get up - probably because he knew I'd detour him to the bathroom, as I've done many times. He wound up not eating dinner (he had the NV, his meds, and a snack not long before dinner) so he didn't go hungry and, when it was time to go up to bed, he went up without too much problem.
Tomorrow is the start of summer school and the first of the camps - I spoke with the woman who will be Josh's aide for camp, Stephanie, and she will hopefully call back later tonight as well. There's a lot to talk about when it comes to my guy! Good thing - she's blonde! Josh has a soft spot in his heart for blondes!
Day 17 tomorrow - a big day!
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