Sunday, June 20, 2010

Day 22 and 23

Yesterday was so much fun! Josh was all excited about the train hunting and was up at 5:26 (darn digital clocks!) rarin' to go. So, we were out the door at 6:55. We got to the lab by 7:10 and, with only a minor hesitation and one need to sit down to "regroup," we were in the lab by 7:15. We had tried to get the lab work done first - he had to fast for that. But, the lab tech was all by herself, she was tiny (Josh was almost a good foot taller than her and probably weighed more than her as well!), and, even though I was sure I could hold Josh's arm still enough for her, she was nervous about taking blood from him. So, we will have to go on a different day when there are more techs there to help out. Oh well. We were on the road to Hinsdale at 7:25.

We got to Hinsdale, to the park right next to the tracks, and we had our breakfast as we watched trains. Bummer of a BNSF day - we wound up staying there until almost 10:30 - we even walked around the park a bit for awhile - and saw only Metras and one BNSF train that was only three engines and no other cars. We had fun watching the guys doing some gardening nearby - Josh has been enamored with lawn mowers lately so he was in heaven watching the guys doing the "standing" mower. There was even a "boompah guy" - apparently the homeowner - who was busy supervising the poor guys trying to do their jobs. ;-) The people and dog watching was fun, too. There are just some people who shouldn't wear spandex jogging outfits! But, the most exciting thing was the walking around the park. The last time we went to Hinsdale, as I wrote yesterday it was probably a year or more ago, Josh wouldn't get out of the car at all. Even when we've gone train hunting more recently, he will not get out, just sits in the car. The fact that he got out yesterday - there was some hesitation and he did need to "regroup" by sitting on a picnic table bench at one point - and was walking around the hilly park just great! I remember the first time we went to Hinsdale, I had brought with a ball or two and a blanket - we had tossed the ball around and played some soccer, but things had changed especially after the broken leg last Fall. With him getting out yesterday, I think we're on the way back to being able to bring that ball and blanket again! Yeah!

After doing the walk in the park and waiting for more BNSF's that didn't show, Josh said he wanted to go see the Union Pacifics ("yellow pacifics") in Elmhurst. So, we went there and wound up having a lunch picnic. There were some train fanatics there - these people are nuts! One guy was walking around with a slr camera, walkie talkie, telephone in his ear, notepad, and huge camera bag on his back, another guy had his tripod all set up, and there was a "boompah guy and lady" sitting on a park bench with their slr's out and ready. We always see lots of UPs, and yesterday was great for it. We were sitting probably only about 10 feet from the tracks and the trains were great! I can't believe I just wrote that! LOL! But, Josh had a great time and, around 12:45 I said I had had enough, that I was tuckered out. So we went home and we both just crashed. We got home just about 2:00 and I think we were both snoozing by probably 2:15! Before laying down, though, Josh went into the bathroom - AND PEED without me having to remind him! Yeah!!!

I woke up before him and, when he woke up it was about time to think about dinner. He wanted pancakes so I made some up (without setting off the smoke alarm for once!). It was so nice out, I just didn't want to sit around the house so I suggested going to the drive-in to see a movie! Toy Story 3 was playing. Josh doesn't like movie theaters (although I keep trying and he did go see a movie with his class this year) so he was not crazy about the idea. I explained that a drive-in means we get to just sit in the car and, after some initial hesitation, we went. Boy was that fun! He as cracking up at all the kids he saw sitting on top of their vans, all the dogs that were there, and even had some pizza from the concession. The movie didn't actually start until almost 9:30 but he was awake and at least saw the start of the movie. He fell asleep about 1/2 way through but it was a good movie, even brought a couple of tears to my eyes at the end. It's a shame the movie was so late - there's a lot of stuff toward the end with garbage trucks, a garbage dump, and stuff like that - Josh would have like that, so I'm going to have to get a copy when it comes out or at least watch it with him when it comes on On Demand. We got home around 11:30 and he came in, went right upstairs, PEED!, and fell right back to sleep.

Of course, he was up at his usual time - 5:30-ish. I told him to go pee and we'd go back to sleep for awhile since it was so early. There's a scene in A League of Their Own where the Tom Hanks character, after a night of drinking, goes into the bathroom in the locker room and the Madonna character times him peeing - that's all I could think of! LOL! He must have peed for a good 2 minutes! But, he did go back to sleep and he is still sleeping now, about 7:40 a.m.

We're totally out of NV today and it won't come until tomorrow. Yesterday he wound up getting one serving divided between a.m. and p.m. We'll see what happens today and tomorrow until the shipment comes tomorrow (I hope). I think another week on NV and I'll reintroduce the fish oils. I had stopped the fish oils when Josh had his tonsils out two years ago (surgeon told me to) and I've only done them sporadically since then. Maybe with the combination of the NV and fish oils there will be even more surges and progress. I'm going to have to be creative, I think, in giving the fish oils, though. Since Josh started taking the Keppra for the epilepsy he has been resistant to taking any other meds. When he had his bronchitis and flu in December he was really difficult about taking the antibiotic they put him on - he did it, but it was tough. He'd take the Keppra, then put up a fuss about the antibiotic. So, with the taste of the fish oils and it being another "pill," this could be tough. Maybe if I remind him they are the "magic" fish oils that help him with talking he'll by OK with it... time will tell.

Day 23, Father's Day, begins! Gramma and Boompah will be here for a BBQ, and it's supposed to maybe rain/be hot. Hopefully the lack of NV will not have too much effect but, again, we'll see!

HAPPY FATHER'S DAY EVERYONE!!

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